So I havent talked about it on here mucj but Olivia has a skin condtion called Urticaria Pigmentosa or UP. Its a pediatric form of Mastocytosis. It is a none contagious skin disease. They do not have a cure for it nor do they know how or why it happens. There are too many inflammatory cells (mast cells) in her skin. The main symptom are brown spots on the skin which can become red and inflamed with rubbing... heat... cold... stress.. foods... etc... The spot can look much like a hive. It scratched it can become a fluid filled blister. It goes away by puberty in about half of the cases...
It really breaks my heart for my beautiful little girl.. Luckily most of Livs are on her tummy and back... This is her back after a bath.. the water irritates it a bit. This was a few months ago.. She has gotten more spots recently.
She has a few spots on her face but they arent nearly as bad as the ones on her back. They stay this color unless she gets really hot (like sometimes when she sleeps on my arm...) then they turn redish. Her back rarely looks this good due to clothing rubbing on it nearly all the time.
Today she had her first bad reaction to the sun... Its the first time I thought they where going to blister...
I'm so nervous for when she starts school... Kids can be so mean when they find something a little different in a peer... We just have to teach her to love her polka dots and hope they find a way to help her ... and pray that they do fade for her...
Good video explanation
yea, im a little nervous about pyper with even just pre-k, b/c of her speech, we've been referred for speech therapy, so hopefully it will all be settled by the time she starts kindergarten! Liv will be fine, and just think it could always be worse...just remind her that she is a special girl, and like you said, w/ her own little polka dots!!!!
ReplyDeleteHey girl, thank you for teaching us about this! I had no idea nor have I ever heard of this skin condition! I do pray that they will fade with age just as with Jaselle's strawberry mark it is to fade with time! But teaching other parents about this can help us to teach our children so they don't stare nor criticize! Hope a cure or treatment is soon found it pains me to see how such a small baby has to deal with the blisters! Praying for ur baby girl! Love her smile, she looks like such a happy baby!! Good job girl!!
ReplyDeleteMy 3 month old son was just diagnosed with this. I found your blog while researching the condition.any tips or advice?
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